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[原创翻译] 病友故事：在与帕金森病的斗争中，决不低头

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日期: 2011-07-12 01:26

斯宾赛-安德森(Spencer Anderson)自40多岁时患上帕金森病之后，通过持续不断的训练和低剂量的常用处方药物治疗，重新找回了失去多年的知觉。他说：“在被确诊患病12年后，如果我不说，没有人会知道我曾是个帕金森患者”。

　　帕金森病除了药物和手术治疗，在患病早期和中期，正确、适量的运动疗法，亦非常重要。斯宾赛-安德森(Spencer Anderson)自40多岁时患上帕金森病之后，通过持续不断的训练和低剂量的常用处方药物治疗，重新找回了失去多年的知觉。他说：“在被确诊患病12年后，如果我不说，没有人会知道我曾是个帕金森患者”。下面的内容由 Golden Pig 翻译自 Northjersey.com 的文章： In battling Parkinson's disease, never look down (在与帕金森病的斗争中，决不低头) 。

　　据报道，每个帕金森病人对于帕金森的发展与变化都有不同的经历。

　　同样的，我也觉得每个人对于帕金森侵袭都有不同的反应，对于不同的反应会采用不同的方法，而不同的方法又会得到不同程度的成功。我非常庆幸自己得到了包括医生、朋友、家庭和帕金森实践者的帮助和支持。在我与帕金森的斗争中，我发现了我成功的秘诀。

　　同样幸运动地是，我在得到帮助以前，就已经开始利用这个秘诀它的优势了。12年前，也就是我四十多岁的时候，我被确诊为帕金森患者。当时我把跑步当作我的治疗方法。因为我觉得如果我身体都倒下了的话，那我的病将会更严重。我花了很多时间去跑步，五年后，我感觉到疲惫，不得不把跑步换成了短途旅行。

　　七年前，我拖着我七尺的身体真正地走进当地的基督教青年会。通过传统的锻炼和低剂量的常用处方药物治疗，我的身体有了一定的改善，我又重新可以参加跑步运动了，并且连续两年参加了一个5千米的跑步比赛。由于坚持锻炼，我的病情恶化速度放缓。虽然我知道帕金森病没有治愈，但是持续的微妙变化提醒我，病情正在好转。

　　我得到了Ludmila Vucolova的帮助，她自愿申请研究生教育，进行跨学科的身心研究，身体机能的研究以及物理治疗和瑜珈教学经验的研究。Vucolova给我提供了理论和实践上的帮助来抑制，甚至可以说扭转了疾病的恶化。集中式的一对一训练计划主要是通过调整不正确的惯性运动模式来恢复身体原始结构和功能。这些常见的模式包括不良的身体姿势和身体的摇摆，这些都是帕金森的典型症状。

　　从我的病情来看，我的身体已经开始前倾，并且显示一侧弯曲。Vucolova告诉我怎样该通过改变重心来影响身体动作、怎样利用身体额外的能量来弥补身体缺陷以及错误的身体位置会给神经系统怎样影响。Vucolova’s的重点是通过扭转这些习惯模式来释放脊椎压力，改善血液循环系统和呼吸系统，改善身体的协调性从而恢复身体的活力。

　　Vucolova相信，持续不断的训练就是我重新找回了我失去多年的知觉的原因。她把这个生动地比喻为“从盒子的束缚中走出来”。她解释说到，这个方法就像是在身体和大脑之间逐渐开辟新的交流连接路径，来唤醒身体的每个部位。通过改善呼吸系统模式来增加肺活量，从而增加身体的能量。她告诉我如何在移动中稳定身体的不同部位、如何使下肢产生意识。这所有的一切都是为了改变我身体的惯性模式。

　　我也真正意识到这些作用是显著的，甚至可以说是难以置信的。我已经改变了我的神经系统和主要的运动区系统。在被确诊患病12年后，如果我不说，没有人会知道我曾是个帕金森患者。我在做最后一次检查的时候，我的主治医生说道：“如果不是我亲眼所见，我肯定不会相信会有这样的奇迹。”诸如这些来自专业的或者是我身边的朋友和社会上给过我帮助的人的评论都会使我更加努力。

　　在过去的10个月里，我的努力付出和坚定的信念使我在步态、柔韧、平衡和协调方面都有了彻底的改善。我的身体意识增强了，身体机能提高了，身体也逐渐变得可以控制了。由于我持续不断的努力，我的身体健康水平有所提高了，可以像年轻人、正常人一样运动了。我又找回了曾经属于我的那些运动方面的骄傲。

　　我并没有增加我的药物剂量。我对生活的态度也是乐观的，从我的脸上和身体上都洋溢着我的开心与幸福。我的演讲清晰而易懂。康复前后的照片和录象记载了我耐力的提高，并且展示了一个强壮而又健康的男性。他在与疾病的斗争中，决不低头，而是抬起他的头，眼光向前看，抓住一切提供给他的可利用的机会来战胜疾病。

　　我一直在工作，并接受了一个严格的、日常的训练计划，并且还有时间通过自愿社会活动来回报社会。我也决不会向困难可挫折低头，我专注于我将要达到的彼岸，而不会在乎路途中会遇到多少阻碍。

　　作者: Spencer Anderson,里奇伍德（Ridgewdood）人，里奇伍德（Ridgewood）海外基督教青年。

　　注：原文已经被删除，我将保存的原始英文亦张贴如后：

In battling Parkinson's disease, never look down

IT IS SAID that every person with Parkinson's disease has a different experience with how the disease manifests and progresses.

I would also suggest that each individual has a different response to the onset of the disease, a different approach to the appearance of symptoms, and a different result with different degrees of success. I have been fortunate to receive the help and support of many people, including physicians, friends, family and exercise practitioners. In my battle, I found what worked for me.

I was also fortunate to have found help before I got past the point of being able to take advantage of it. I was diagnosed just over 12 years ago, in my mid-40s. I fought back by adopting running as my key therapy, figuring that if I was going to fail physically, I would fail from a higher level. This bought me some time, but after five years I had to give up running because I started to trip when I became fatigued.

Seven years ago, I literally shuffled my near- 7-foot frame into my local YMCA. Through traditional exercise and low dosages of commonly prescribed medication, I was able to make a well-publicized return to running, and have participated in a 5K race the past two years. As a result of regular exercise, the progression of the disease was slowed. The disease was still there, however, and I knew there continued to be subtle changes reminding me that Parkinson's was still progressing.

I accepted the help of Ludmila Vucolova, who volunteered to apply her postgraduate education, interdisciplinary mind-body studies, knowledge of body mechanics and experience in physical therapy and yoga instruction.

Vucolova has given me the tools and education to equip me for the task of stopping — and even reversing — the progression of the disease. Intensive one-on-one sessions were focused on restoring structural alignment and functional ability by reversing the incorrect habitual patterns of movement that I had adopted. These common patterns include poor posture and postural sway, typical in patients with Parkinson's.

In my case, my body had shifted forward and displayed a sideways curvature. Vucolova demonstrated how the shift of the center of gravity affects how the body moves, how the body uses extra energy to compensate and how incorrect body position contributes to the display of neurological symptoms. Vucolova's focus was on reversing these habitual patterns, releasing compression of the spine, improving circulation, breathing and flexibility, and restoring energy.

Vucolova credits the hours of hard work as what enabled me to restore sensory perception that was dormant for many years. She describes this as moving "out of the box." She explains this as each part of the body awakening and gradually building paths of communication between the body and brain, paths that had not been used. She coordinated breathing patterns to increase lung capacity, resulting in increased strength. I was taught how to move, stabilizing the different parts of the body and how to be conscious of the ground under my feet. All of this was intended to reverse the habitual patterns my body had adopted.

What I do realize is that the results have been notable — even incredible. I have reversed neurological and cardinal motor symptoms. Twelve years after the initial diagnosis, people do not know I have Parkinson's unless I tell them. At my last medical exam, my neurologist said, "If I didn't know, I couldn't tell." Comments like that from professionals and people I work or socialize with help provide me with the motivation and drive to keep working.

Hard work and determination over the last 10 months have allowed me to significantly improve gait, balance, flexibility and coordination. I have developed better body awareness, improved body mechanics, and feel I am in control of my body instead of my body controlling me. As the result of continuous effort I have been able to aggressively improve my fitness level, exercising next to younger, fully able people. I move with an athletic grace that I had lost long ago.

I have not increased dosages of medication. My approach to life is positive. I smile and show emotion in my face and body. My speech is clear and understandable. Photos and video of the "before and after" graphically document my increased stamina, and show a strong, apparently healthy male who has decided not to look down, but to keep his head up, eyes focused forward, taking advantage of the opportunities offered to him.

I work full time, maintain a rigorous, daily exercise schedule, and have energy to allow me to give back to the community through volunteerism.

I never look down for fear of tripping or falling. I focus on where I am going, not where I have been.

Spencer Anderson, a Ridgewood resident, is a member of the Ridgewood YMCA board.

• 译文：帕金森病的运动疗法 - Exercise for People with Parkinsons Disease

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